A new website created to provide information about psychosis.
What do you think? See it here
Haven’t listed our support groups though, to see those, please visit our website here
Hi all. We are pleased to say we have a new venue for our Henderson Auckland NZ, support group. Please see our new flier here. Free to come along. Dates are shown for next few 2018 meetings.
The following is an excellent interview conducted by Chris Barton in today Saturday 4th Junes Weekend Herald in New Zealand. Chris interviewed Ron Coleman here in Auckland and attended one of the workshops the Hearing Voices Network held there.
You can see the article on the New Zealand Heralds website here.
Here is the article below:
“You have voices telling you to kill yourself. Do you ask them why?”
No, they don’t listen.
“If I told you to go and stand in the middle of the road, you wouldn’t do it.”
No, if you told me to I wouldn’t.
“If I asked you to do it you would want a reason, but you don’t want a reason from the voices.”
Yes I do.
“Then ask them.”
This is not one’s idea of a normal conversation, but for the participants it makes perfect, potentially life-altering sense. Ron Coleman has just begun a workshop at Western Springs Community Hall on a radical self-help technique called voice dialogue.
In a five-minute conversation with a young woman he draws out, to her considerable surprise, an outline of her situation. She hears two negative middle-aged voices – one male, the other female. The male voice is worse.
She is also dealing with drug addiction, but that’s not the cause of her voices. They began when she was 10.
She has never asked what the male voice is called.
The woman is clearly astounded by Coleman’s revelation that she can ask her voices for information. “Nobody’s suggested that to you before,” he tells her, “because we are caught in the world of voices rather than having dialogue about it.”
Coleman, diagnosed with schizophrenia in 1982, should know. He spent 10 years in and out of British psychiatric hospitals, including six as a mostly compulsorily “sectioned” in-patient. During that time he was heavily medicated with a range of antipsychotic drugs and given 40 sessions of ECT.
Today he lives happily with his wife, family and seven voices. The workshop at the Western Springs Community Hall is part of a global grassroots organisation known as the Hearing Voices Network.
“What we try to do,” he tells the Herald, “is help people live with their voices.”
Born in Dundee, Scotland, Coleman turned his life around in 1991 when the Hearing Voices Network was just getting under way in Britain. He’s since gone on to become a key figure in the network and travels the world spreading its message and governing principle: “It doesn’t matter whether we conclude our voices are coming from ourselves or whether they are the voice of God or the voice of demons. We accept the diversity of everybody’s experience,” he tells another voice hearer.
“Do you hear a lot of voices?”
I hear angels.
“Are they all positive?”
Yes but sometimes my voices worry me because I worry about whether I’m saying it or whether the angels are saying it.
“So what is the purpose of angels?”
To guide me.
“So how do you test what they are saying is from the angels themselves?”
I say, ‘Is that the angels there?’
“And they say yes?”
Yes. But sometimes I don’t hear at all. I get scared because of some of the things I hear. I get scared because I don’t know if the devil can lie to me.
Coleman points out that that the devil was an angel – “an archangel and he was tossed out of heaven”. A good test as to whether an angel was talking, he suggests, would be if it asked her to do something to harm herself or anybody else. If it did, he says, that would be inconsistent with angels.
“See, I’m not going to change your mind whether there are angels or not. The only thing I’m interested in is whether it’s good for you. That it works for you.”
The network believes that auditory hallucinations or “voice hearing” shouldn’t be seen as something pathological that needs to be stopped, but rather as something meaningful and tied to the hearer’s life story. This tends to be at loggerheads with conventional psychiatry. Support groups around the world run by voice hearers for voice hearers openly challenge the standard psychiatric relationship of expert physician and psychotic patient, but increasingly some psychiatrists and other mental health professionals are seeing merit and logic in the Network’s approach.
Coleman says his recovery began when, at his first Hearing Voices group, someone told him his voices were real. “What I’d been told in the psychiatric system was that they weren’t real, they weren’t really there. That I had to ignore them and I couldn’t get involved with them. When they’re real it means you can do something about them.”
Hearing voices is like reading a really good book when you can hear the author’s characters. “As you read you can create the characters in your head. Imagine that externalised. That’s how it is with voices. You actually hear them.
“They have different characteristics. They speak with different accents. They are male or female. They are positive and negative.”
Hearing voices isn’t as unusual as we think. Many will have experienced it in the threshold consciousness between waking and falling asleep. There are also numerous examples of well-known and accomplished voice hearers throughout history.
“The Bible is written by voice hearers,” says Coleman. Think Moses and the burning bush and Jesus wandering for 40 days and 40 nights, hearing the devil’s temptations.
The roll call of other voice hearers is as variable as Winston Churchill, Socrates, Galileo, Pythagoras, Carl Jung, Gandhi, Joan of Arc, Teresa of Avila, Mohammed, William Blake, Zoe Wanamaker, St Francis of Assisi, Leonard Cohen and Sir Anthony Hopkins.
Voice hearing, as Coleman’s own story demonstrates, is often linked to unresolved personal trauma. In his case he was sexually abused by a Catholic priest when he was 10 years old.
“My explanation for voices is that I created them because I needed to deal with what was going on.”
Coleman’s voices didn’t actually arrive until he was adult. Prior to that he had a different coping mechanism – rugby. “I played as prop and when I went into the scrum I’d put the face of the Catholic priest who abused me on to my opposite number and I’d just try to kill the guy.”
Then he broke his hip and couldn’t play rugby anymore.
“I ended up not having the outlet, but still having the priest in me as a constant reminder of everything and no way to get rid of my anger. Eventually it came out as voices.”
One of the first voices he heard was the priest telling him it was his fault. “That I led him into sin and I should burn in hell”.
Another voice was his father. “I felt like I’d failed my family so I had my father’s voice saying things like: ‘You’re no good. You’re f***ing worthless. You’re a failure’.”
Then there was the voice of first wife Annabelle who died suddenly. “She used to tell me to kill myself so we could be a family again. It was more about the fact that I missed her so much.”
Negotiating a way to cope with his voices took a year. With Annabelle he realised he could be with her as a voice. “I said: ‘I don’t need to die to be with you. I can be with you now – let’s talk’.” He’s since remarried and now has agreement with Annabelle only to talk to her on anniversaries.
His father’s voice changed from negative to positive after his family finally learned what happened to him as a child through a 1995 BBC Horizon documentary, Hearing Voices. His father asked why he never told him about the abuse. Because, said Coleman, he didn’t think anyone would believe him.
“My dad said yes he would, and he would have killed the priest.”
Coleman says he still hears the priest’s voice from time to time when he’s overworked and tired. What does the priest say now? “But I still think it was your fault.”
Coleman takes it as a sign that he needs to take time out and go fishing. “As soon as I hear him I tell him to f-off. ‘I’m not going to listen to you. I don’t need you. You have no power any more’.”
Getting to that point – where he could refuse to hear the priest – required dealing with his own guilt and shame. “I can’t change the past, but I’ve resolved my feelings about my own abuse.”
Another voice Coleman calls teacher. “That was my own voice – a voice trying to keep a bit of sanity in my mind. It’s always a voice of reason. In a funny sort of way I was externalising my own self rather than having inner dialogues. I tend to externalise it now, because I’m so used to hearing voices.”
There are three other positive voices – one called Dave who was someone he knew who died, and two other he keeps to himself. “The reason I don’t talk about them is I share an awful lot of my life and those are voices just for me.”
As well as providing support for voice hearers, the Hearing Voices Network is also a human rights movement – to protest at the way those diagnosed with schizophrenia are treated and to reduce the stigma attached to mental illness. Coleman says he’d like to see professionals in mental health systems spend much more time listening to people before treating them.
“I would like acknowledgement when the treatment is not working that we do something different rather than give them other drugs or just increase the drugs.”
He wants proper informed consent too – people told about the reduced life expectancy downside of antipsychotic drugs before they are given them.
He believes that if there was a properly controlled test – comparing outcomes for voice hearers engaged with the network and those using the mental health system – the network would come out on top. “We’re saving lives.”
Coleman wears his diagnosis on his skin – a tattoo on his arm reads “Psychotic and Proud”. He did it to have a constant reminder of where he came from.
“It says I refuse to be ashamed about what happened to me. I refuse to be ashamed of my diagnosis and I refuse to be ashamed of the fact I was a psychiatric patient.”
Voice of reason
* The Hearing Voices Network, founded in Britain in 1988, developed from the research of Dutch psychiatrist Marius Romme.
* It has since grown into a global self-help organisation, active in 20 countries, for people who hear voices.
* Members advocate the use of techniques employed by those who have successfully coped with their voices. This can include acceptance and negotiation with the voices.
* Hearing Voices Network Aotearoa NZ has about 100 members and holds support groups in West Auckland, Grey Lynn, Glenfield, Hamilton, Palmerston North and Wellington.
* Approximately 75 per cent of patients diagnosed with schizophrenia, 20 per cent of patients with mania and 10 per cent with depression hear voices.
* About 30,000 New Zealanders are affected by schizophrenia.
Find out more on Hearing Voices Network Aotearoa NZ
Thu Aug 27, 2009 7:49am.
New support groups are offering help for people who suffer from auditory hallucinations . Hearing Voices network launched in Victoria (AM) Mental health researchers estimate that about 4 per cent of people experience auditory hallucinations, where they hear voices. In Australia, the problem has typically been treated with medication. But a network of self-help groups that has been successful overseas is now gradually being rolled out around the country.
Janet Karagounis started hearing the voices of her imaginary friends when she was 8, but by her late 20s the voices were more sinister and she ended up in a psychiatric unit. “Basically I had aliens, I had government conspiracies, every couple of years I basically was put in a psychiatric unit and I was first diagnosed chronic schizophrenic,” she said. “That wrote me off so to speak. I had no hope, no future, no chance of working. And yeah, now my life is glowing.” Ms Karagounis credits a Hearing Voices group for turning her life around and she’s now a group facilitator. “When I discovered that actual past events in your life and trauma are associated with hearing voices, once I made that connection, everything started to become clearer,” she said.
“You discovered whether your voices were male or female. They asked you questions about your voices. They made you feel like a person. And the other people, every time someone would come, you would see people nodding and that acknowledgement gave you power and gave you power over your voices.”
Hearing Voices groups are being set up in Western Australia and New South Wales and a Tasmanian network has just received funding. The Voices Vic network is being rolled out in Melbourne and the regions by community service organisation the Prahran Mission. It is working with mental health services, community groups, voice hearers and carers and is being funded mainly by philanthropic trusts. Indigo Daya is the project manager. She says that although the latest research suggests about 4 per cent of people hear voices, less than a quarter of them are actually diagnosed with schizophrenia. But hearing voices can still be a distressing experience and that’s what the groups help people handle. “We are not interested in getting rid of people’s voices, which is a key difference for us,” she said. “Our approach is to say that hearing voices can be a very normal human experience. What is not so great is the distress that can be associated with it. So we are interested in working with the distress. “What we do is teach people to listen, but listen selectively. To recognise that they have just as much power as the voices, and in fact more. And to set boundaries.
We are pleased to say that a Hearing Voices Network Support group is starting in Wellington
The first meeting is the be held on 17 September at 5 Hobart Street Miramar time : 1.30pm
They plan to run it once a month and depending on the amount of interest the venue may change. So If you are interested in attending please contact: Lize Della Ruelle on: 021 049 0887 or Des on 02171568 so they have an idea of numbers and can also let you know all the details.
The Hearing Voices Network in Australia have just completed a new booklet about hearing voices.
It is a mine of information. The 36 pages include personal recovery stories, the background of the Hearing Voices Network, some excellent advice on coping with voices, and cover different perspectives on positive and negative voice hearing experiences.
You can read it online or download the booklet here .